How Is David?: If #3 happens soon

Monday, June 2, 2008

If #3 happens soon

Dr Ross said if David has his third seizure in the next hour or two then there will be time to look at the EEG and assuming that's ok, to pull out David's wires in the morning, watch him to make sure he's ok, then send him HOME tomorrow afternoon!

We expected not to go to graduation but now that it's so close it's really hard not to hope.

Please pray for me to be patient. I'm tired. Thanks!

3 comments:

Beth N said...: I should have also said welcome to the Hannulas who came at noon to visit. Thank you for the prayer and love!; June 2, 2008 at 2:38 PM
Unknown said...: Dear David,

Just hanging in there a little more, seems that you are almost ready to go home. My prayers and thoughts has been and will be with you.

Best
Ali Azizi; June 2, 2008 at 4:10 PM
Beth N said...: archive
Monday June 2: Nurse Raffi with a SMILE showed us the surgery schedule for tomorrow--Dr Ross put David on it for removing the wires, just in case he has #3 seizure today!! David is eager for the seizure and in good spirits. Two nights of 4 hours of sleep and he looks great--superman. He is supposed to be tired and seizure-prone....; June 3, 2008 at 11:45 AM

Post a Comment

Pray for David

+Pray for no seizures and healing from epilepsy.

+Pray for no colds (often come with seizures), wisdom in matters of health.
+Thank God for the period of no seizures from July 31 2008 to July 7, 2009, even with one less medicine and his VNS implant being turned way low inadvertently.
+Thank God for a full recovery from the trauma caused by the grid on August 1 2008.

+Thank God for strength during the first four semesters at college.

+Pray for strength and wisdom through the third year, taken from home.

+Thank God for three months with no seizures, from early August to early November '11

+Pray for that pattern, of no seizures or even auras, to resume and remain

WHAT'S UP WITH DAVID--updated 9/19/09

David was diagnosed with focal epilepsy in 2000.
He has tried seven meds and had a device implanted, but still has had seizures and side effects.
Since summer 2007 he has been on a track toward surgery, which can be very effective. In July 2008 we got to the final stage which is to have grid surgery.
Grid surgery on July 29 involved placing a silicone grid of electrodes directly on his brain. A cable connected his head to an EEG screen, and he stayed in his hospital room to have seizures. If the grid shows where seizures come from then usually the spot can be removed and the epilepsy is gone or alleviated greatly.
Things went wrong on August 1 when the grid turned out to be very irritating and caused a lot of fluid buildup and swelling so it had to be taken out in emergency surgery as David started slipping into a coma. The opportunity to do therapeutic surgery was lost for the time.
But things started going well as he had no seizures for 11 months and 1 week after coming out of the hospital. Things are really good because he (accidentally) started taking one less medicine, and because his vagal nerve stimulator was (accidentally) set way too low after surgery, and still no seizures. This is very unexpected so maybe the trauma altered something in his brain and healed his epilepsy.
Despite some bumps things are still going well, with very few seizures. After asking for the VNS to be turned down, then having many more auras, turning it back up, and having sleep trouble, he has had seven seizures since July 7, '09. However, each seizure has been gentler than the last, and a common denominator has been found in many of them - looking at computer/TV screens too long.

How Is David?

Monday, June 2, 2008

If #3 happens soon

3 comments:

Pray for David

Blog Archive

WHAT'S UP WITH DAVID--updated 9/19/09

Contributors

Guestbook