Friday we went to San Diego and hit the beach in the late afternoon. David went full steam out to the surf and boogie boarded for nearly an hour with a HUGE smile on his face.
At one point I recalled that three days before we were pushing him in a wheelchair around the zoo and wondered if we were not being careful enough. Well, the zoo is not quite as interesting and I usually feel like I'd like a wheelchair when I am there, so maybe it was a mental attitude difference for David.
We hit the beach again for another hour on Saturday and David did it again. Sunday he looked a bit tired and took a nap and had a small headache, but otherwise, he got away with it!
David's eye is getting better and better though it is still not quite straight. He has been seeing a double image and the second one is at an angle. Today he said the angle is less than it was.
Apparently David's case didn't get discussed last Wednesday so I just requested that it will come up in the neurology doctors' conference on Wednesday Sept 10, and we have a doctor appointment on the Friday after to learn what they recommend next.
Please pray for me to keep trusting in God. I finally have time to process it all and have been discouraged at times. This morning I was encouraged by Isaiah: "When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you. When you walk through the fire, you shall not be burned, nor shall the flame scorch you."
Please also pray with us for healing for David, however it happens. We need wisdom.
Say hello by signing the Guestbook at the bottom, or leave a comment--click on "comments" on the post; scroll down in the window that pops up and sign in as Anonymous.
Pray for David
+Pray for no seizures and healing from epilepsy.
+Pray for no colds (often come with seizures), wisdom in matters of health.
+Thank God for the period of no seizures from July 31 2008 to July 7, 2009, even with one less medicine and his VNS implant being turned way low inadvertently.
+Thank God for a full recovery from the trauma caused by the grid on August 1 2008.
+Thank God for the period of no seizures from July 31 2008 to July 7, 2009, even with one less medicine and his VNS implant being turned way low inadvertently.
+Thank God for a full recovery from the trauma caused by the grid on August 1 2008.
+Thank God for strength during the first four semesters at college.
+Pray for strength and wisdom through the third year, taken from home.
+Thank God for three months with no seizures, from early August to early November '11
+Pray for that pattern, of no seizures or even auras, to resume and remain
Use the Blog Archive to start from the beginning of this record
Blog Archive
-
▼
2008
(130)
-
▼
August
(24)
- Progress
- Photos
- Boogie boy
- Pray for wisdom today
- Fun at the surgeon's
- Onward
- Count it all joy
- Walking well
- Slower progress
- He's Home!
- Tuesday
- Wrapping up
- Sunday post from David
- Sunday night status of David
- Thanks for your for prayers
- Patient David
- Happy doctor
- Good news, he is unhappy
- Better
- Early morning cat scan
- Sedation
- Out of Surgery
- Emergency Surgery
- Better but still not great
-
▼
August
(24)
My angel!
2008
WHAT'S UP WITH DAVID--updated 9/19/09
David was diagnosed with focal epilepsy in 2000.
He has tried seven meds and had a device implanted, but still has had seizures and side effects.
Since summer 2007 he has been on a track toward surgery, which can be very effective. In July 2008 we got to the final stage which is to have grid surgery.
Grid surgery on July 29 involved placing a silicone grid of electrodes directly on his brain. A cable connected his head to an EEG screen, and he stayed in his hospital room to have seizures. If the grid shows where seizures come from then usually the spot can be removed and the epilepsy is gone or alleviated greatly.
Things went wrong on August 1 when the grid turned out to be very irritating and caused a lot of fluid buildup and swelling so it had to be taken out in emergency surgery as David started slipping into a coma. The opportunity to do therapeutic surgery was lost for the time.
But things started going well as he had no seizures for 11 months and 1 week after coming out of the hospital. Things are really good because he (accidentally) started taking one less medicine, and because his vagal nerve stimulator was (accidentally) set way too low after surgery, and still no seizures. This is very unexpected so maybe the trauma altered something in his brain and healed his epilepsy.
Despite some bumps things are still going well, with very few seizures. After asking for the VNS to be turned down, then having many more auras, turning it back up, and having sleep trouble, he has had seven seizures since July 7, '09. However, each seizure has been gentler than the last, and a common denominator has been found in many of them - looking at computer/TV screens too long.
He has tried seven meds and had a device implanted, but still has had seizures and side effects.
Since summer 2007 he has been on a track toward surgery, which can be very effective. In July 2008 we got to the final stage which is to have grid surgery.
Grid surgery on July 29 involved placing a silicone grid of electrodes directly on his brain. A cable connected his head to an EEG screen, and he stayed in his hospital room to have seizures. If the grid shows where seizures come from then usually the spot can be removed and the epilepsy is gone or alleviated greatly.
Things went wrong on August 1 when the grid turned out to be very irritating and caused a lot of fluid buildup and swelling so it had to be taken out in emergency surgery as David started slipping into a coma. The opportunity to do therapeutic surgery was lost for the time.
But things started going well as he had no seizures for 11 months and 1 week after coming out of the hospital. Things are really good because he (accidentally) started taking one less medicine, and because his vagal nerve stimulator was (accidentally) set way too low after surgery, and still no seizures. This is very unexpected so maybe the trauma altered something in his brain and healed his epilepsy.
Despite some bumps things are still going well, with very few seizures. After asking for the VNS to be turned down, then having many more auras, turning it back up, and having sleep trouble, he has had seven seizures since July 7, '09. However, each seizure has been gentler than the last, and a common denominator has been found in many of them - looking at computer/TV screens too long.
No comments:
Post a Comment