How Is David?: Photos

Monday, August 25, 2008

Photos

David and Aunt Farideh and cousins Kimia and Kiana.

These were taken two weeks ago. David doesn't wear the eye patch any more. His left eye is almost totally straightened out and he is seeing only one image. Yeah!! His left eyelid is still a bit droopy but better than in this photo.

He is much more normal. For a couple weeks after the "incident" he was content to just sit doing nothing. Now he is playing board games and using his computer and staying involved for most of the time. Yesterday after church he went to the singles lunch then played football in the heat, and felt fine. Today I asked him to take over counter-cleaning which is apparently a chore he does not like--next opportunity, he was doing his old chore of unloading the dishwasher. Tomorrow he is starting speech therapy. The plan is to have two sessions a week for three weeks.

Everything looks better to me this week. Thank you for the prayers.

Please keep praying for NO SEIZURES! He has had zero since being in the hospital. Yesterday for the first time he felt a slight aura. Wouldn't it be nice if....?

1 comment:

Anonymous said...: Hallelujah about David's eyes!!! Yes, it would be nice if.....never hurts to hope since our hope is in true reality. I am praying daily for you David. Angie Lee; August 26, 2008 at 10:45 AM

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Pray for David

+Pray for no seizures and healing from epilepsy.

+Pray for no colds (often come with seizures), wisdom in matters of health.
+Thank God for the period of no seizures from July 31 2008 to July 7, 2009, even with one less medicine and his VNS implant being turned way low inadvertently.
+Thank God for a full recovery from the trauma caused by the grid on August 1 2008.

+Thank God for strength during the first four semesters at college.

+Pray for strength and wisdom through the third year, taken from home.

+Thank God for three months with no seizures, from early August to early November '11

+Pray for that pattern, of no seizures or even auras, to resume and remain

WHAT'S UP WITH DAVID--updated 9/19/09

David was diagnosed with focal epilepsy in 2000.
He has tried seven meds and had a device implanted, but still has had seizures and side effects.
Since summer 2007 he has been on a track toward surgery, which can be very effective. In July 2008 we got to the final stage which is to have grid surgery.
Grid surgery on July 29 involved placing a silicone grid of electrodes directly on his brain. A cable connected his head to an EEG screen, and he stayed in his hospital room to have seizures. If the grid shows where seizures come from then usually the spot can be removed and the epilepsy is gone or alleviated greatly.
Things went wrong on August 1 when the grid turned out to be very irritating and caused a lot of fluid buildup and swelling so it had to be taken out in emergency surgery as David started slipping into a coma. The opportunity to do therapeutic surgery was lost for the time.
But things started going well as he had no seizures for 11 months and 1 week after coming out of the hospital. Things are really good because he (accidentally) started taking one less medicine, and because his vagal nerve stimulator was (accidentally) set way too low after surgery, and still no seizures. This is very unexpected so maybe the trauma altered something in his brain and healed his epilepsy.
Despite some bumps things are still going well, with very few seizures. After asking for the VNS to be turned down, then having many more auras, turning it back up, and having sleep trouble, he has had seven seizures since July 7, '09. However, each seizure has been gentler than the last, and a common denominator has been found in many of them - looking at computer/TV screens too long.

How Is David?

Monday, August 25, 2008

Photos

1 comment:

Pray for David

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WHAT'S UP WITH DAVID--updated 9/19/09

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