David feels much better this morning. He is in much less pain. Now he is irritated by little things rather than by a throbbing head, which seems good.
He says:
Last night was rather difficult but now I'm feeling pretty good.
He had a huge seizure at 6 am today so they gave him a big dose of Ativan, then another big dose of it at 8:30 so he would make it through an MRI w/o a seizure. The stuff makes him kind of edgy but he is doing really well. Edgy for him is not too bad.
The techs hooked up his wires. He has ten probes with 7 or 8 wires each so it's a big bundle going into the EEG.
Now I have to order him some lunch and get him eating and drinking so they can get him off IV fluids.
Overall everything is going well and he is getting good care.
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Pray for David
+Pray for no seizures and healing from epilepsy.
+Pray for no colds (often come with seizures), wisdom in matters of health.
+Thank God for the period of no seizures from July 31 2008 to July 7, 2009, even with one less medicine and his VNS implant being turned way low inadvertently.
+Thank God for a full recovery from the trauma caused by the grid on August 1 2008.
+Thank God for the period of no seizures from July 31 2008 to July 7, 2009, even with one less medicine and his VNS implant being turned way low inadvertently.
+Thank God for a full recovery from the trauma caused by the grid on August 1 2008.
+Thank God for strength during the first four semesters at college.
+Pray for strength and wisdom through the third year, taken from home.
+Thank God for three months with no seizures, from early August to early November '11
+Pray for that pattern, of no seizures or even auras, to resume and remain
Use the Blog Archive to start from the beginning of this record
Blog Archive
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2008
(130)
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May
(31)
- Hello from a night guardian
- They are twins!
- ANOTHER!
- Hmmmm
- A Little Correction, Update and Praise
- Waiting
- One Down, 2-4 to go.
- ONE SEIZURE!
- God and adrenaline
- Hands off
- Good night
- I love this job
- Good morning
- He ain't smilin' much
- Resting in the ICU
- He's out now and fine!!
- He's in now
- Eyes on the Prize
- On Track for Monday, cont.
- On track for Monday
- Better are five days like this
- A Little Help With a Mother's Day Gift?
- And More Smiles
- Smiles
- Eleven to go
- Thirteen days to go
- It Is Earlier...
- Might Be Tomorrow...
- Steady On
- Surprise Change of Plans
- Beautiful Sleep!
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May
(31)
My angel!
2008
WHAT'S UP WITH DAVID--updated 9/19/09
David was diagnosed with focal epilepsy in 2000.
He has tried seven meds and had a device implanted, but still has had seizures and side effects.
Since summer 2007 he has been on a track toward surgery, which can be very effective. In July 2008 we got to the final stage which is to have grid surgery.
Grid surgery on July 29 involved placing a silicone grid of electrodes directly on his brain. A cable connected his head to an EEG screen, and he stayed in his hospital room to have seizures. If the grid shows where seizures come from then usually the spot can be removed and the epilepsy is gone or alleviated greatly.
Things went wrong on August 1 when the grid turned out to be very irritating and caused a lot of fluid buildup and swelling so it had to be taken out in emergency surgery as David started slipping into a coma. The opportunity to do therapeutic surgery was lost for the time.
But things started going well as he had no seizures for 11 months and 1 week after coming out of the hospital. Things are really good because he (accidentally) started taking one less medicine, and because his vagal nerve stimulator was (accidentally) set way too low after surgery, and still no seizures. This is very unexpected so maybe the trauma altered something in his brain and healed his epilepsy.
Despite some bumps things are still going well, with very few seizures. After asking for the VNS to be turned down, then having many more auras, turning it back up, and having sleep trouble, he has had seven seizures since July 7, '09. However, each seizure has been gentler than the last, and a common denominator has been found in many of them - looking at computer/TV screens too long.
He has tried seven meds and had a device implanted, but still has had seizures and side effects.
Since summer 2007 he has been on a track toward surgery, which can be very effective. In July 2008 we got to the final stage which is to have grid surgery.
Grid surgery on July 29 involved placing a silicone grid of electrodes directly on his brain. A cable connected his head to an EEG screen, and he stayed in his hospital room to have seizures. If the grid shows where seizures come from then usually the spot can be removed and the epilepsy is gone or alleviated greatly.
Things went wrong on August 1 when the grid turned out to be very irritating and caused a lot of fluid buildup and swelling so it had to be taken out in emergency surgery as David started slipping into a coma. The opportunity to do therapeutic surgery was lost for the time.
But things started going well as he had no seizures for 11 months and 1 week after coming out of the hospital. Things are really good because he (accidentally) started taking one less medicine, and because his vagal nerve stimulator was (accidentally) set way too low after surgery, and still no seizures. This is very unexpected so maybe the trauma altered something in his brain and healed his epilepsy.
Despite some bumps things are still going well, with very few seizures. After asking for the VNS to be turned down, then having many more auras, turning it back up, and having sleep trouble, he has had seven seizures since July 7, '09. However, each seizure has been gentler than the last, and a common denominator has been found in many of them - looking at computer/TV screens too long.
3 comments:
I am so glad that everything goes very well for David. I continue praying for David until he is in perfect condition. Love, Grandpa Nasser
Thank you so much for keeping us updated. It is amazing to see God working in all your lives. Your are in my prayers. I will pray for a restful night and direction for the doctors. To Him be all the Glory.
Take care,
Colleen W
archive
Tuesday, May 20: David is pretty comfortable in room E441 at Huntington Hospital. He is eating a little liquidish food as his jaw muscles hurt badly. He is tired and groggy at this point but a lot better than yesterday, so tomorrow he might feel more normal.
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