It seems like we've been waiting and waiting and here it is! At 6pm tonight Sunday he had a good seizure and it sounds like it was recorded well on the EEG. We'll know more tomorrow when the tech or doctor looks at the info.
The nurse gave him Ativan which tends to shut down seizures for a few days. We're not sure why he had to have it but we will ask about that tomorrow also.
Please PRAY that the data looks good and that it shows something good about his future prognosis. They want 3-5 good, well-recorded seizures so please also pray for more.
Thank you God for today--David was in really good spirits this morning, we enjoyed two great worship services at our church, a good seizure happened, and JPL's Phoenix landed successfully on Mars! Our cup overflows.
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Pray for David
+Pray for no seizures and healing from epilepsy.
+Pray for no colds (often come with seizures), wisdom in matters of health.
+Thank God for the period of no seizures from July 31 2008 to July 7, 2009, even with one less medicine and his VNS implant being turned way low inadvertently.
+Thank God for a full recovery from the trauma caused by the grid on August 1 2008.
+Thank God for the period of no seizures from July 31 2008 to July 7, 2009, even with one less medicine and his VNS implant being turned way low inadvertently.
+Thank God for a full recovery from the trauma caused by the grid on August 1 2008.
+Thank God for strength during the first four semesters at college.
+Pray for strength and wisdom through the third year, taken from home.
+Thank God for three months with no seizures, from early August to early November '11
+Pray for that pattern, of no seizures or even auras, to resume and remain
Use the Blog Archive to start from the beginning of this record
Blog Archive
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2008
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May
(31)
- Hello from a night guardian
- They are twins!
- ANOTHER!
- Hmmmm
- A Little Correction, Update and Praise
- Waiting
- One Down, 2-4 to go.
- ONE SEIZURE!
- God and adrenaline
- Hands off
- Good night
- I love this job
- Good morning
- He ain't smilin' much
- Resting in the ICU
- He's out now and fine!!
- He's in now
- Eyes on the Prize
- On Track for Monday, cont.
- On track for Monday
- Better are five days like this
- A Little Help With a Mother's Day Gift?
- And More Smiles
- Smiles
- Eleven to go
- Thirteen days to go
- It Is Earlier...
- Might Be Tomorrow...
- Steady On
- Surprise Change of Plans
- Beautiful Sleep!
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May
(31)
My angel!
2008
WHAT'S UP WITH DAVID--updated 9/19/09
David was diagnosed with focal epilepsy in 2000.
He has tried seven meds and had a device implanted, but still has had seizures and side effects.
Since summer 2007 he has been on a track toward surgery, which can be very effective. In July 2008 we got to the final stage which is to have grid surgery.
Grid surgery on July 29 involved placing a silicone grid of electrodes directly on his brain. A cable connected his head to an EEG screen, and he stayed in his hospital room to have seizures. If the grid shows where seizures come from then usually the spot can be removed and the epilepsy is gone or alleviated greatly.
Things went wrong on August 1 when the grid turned out to be very irritating and caused a lot of fluid buildup and swelling so it had to be taken out in emergency surgery as David started slipping into a coma. The opportunity to do therapeutic surgery was lost for the time.
But things started going well as he had no seizures for 11 months and 1 week after coming out of the hospital. Things are really good because he (accidentally) started taking one less medicine, and because his vagal nerve stimulator was (accidentally) set way too low after surgery, and still no seizures. This is very unexpected so maybe the trauma altered something in his brain and healed his epilepsy.
Despite some bumps things are still going well, with very few seizures. After asking for the VNS to be turned down, then having many more auras, turning it back up, and having sleep trouble, he has had seven seizures since July 7, '09. However, each seizure has been gentler than the last, and a common denominator has been found in many of them - looking at computer/TV screens too long.
He has tried seven meds and had a device implanted, but still has had seizures and side effects.
Since summer 2007 he has been on a track toward surgery, which can be very effective. In July 2008 we got to the final stage which is to have grid surgery.
Grid surgery on July 29 involved placing a silicone grid of electrodes directly on his brain. A cable connected his head to an EEG screen, and he stayed in his hospital room to have seizures. If the grid shows where seizures come from then usually the spot can be removed and the epilepsy is gone or alleviated greatly.
Things went wrong on August 1 when the grid turned out to be very irritating and caused a lot of fluid buildup and swelling so it had to be taken out in emergency surgery as David started slipping into a coma. The opportunity to do therapeutic surgery was lost for the time.
But things started going well as he had no seizures for 11 months and 1 week after coming out of the hospital. Things are really good because he (accidentally) started taking one less medicine, and because his vagal nerve stimulator was (accidentally) set way too low after surgery, and still no seizures. This is very unexpected so maybe the trauma altered something in his brain and healed his epilepsy.
Despite some bumps things are still going well, with very few seizures. After asking for the VNS to be turned down, then having many more auras, turning it back up, and having sleep trouble, he has had seven seizures since July 7, '09. However, each seizure has been gentler than the last, and a common denominator has been found in many of them - looking at computer/TV screens too long.
2 comments:
Well, it looks like Mom beat me here by 2 hours! I'm mostly recovered from that seizure, and it was wonderful, with one of the ordinary auras, not stopping when I pressed the button and called "seizure!", and I managed to hold off the joy of making progress here, which was why I recovered from a promising aura the other day. I am feeling pretty well, and will now go to sleep.
Thank you all for your prayers! I am wonderfully blessed!
archive
Sunday May 25: David has been in good spirits today--the best all week. SEIZURE ONE! One down, four to go.
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