How Is David?: Nice Times

Saturday, November 21, 2009

Nice Times

I've gone three weeks now with no seizures, which might be a record when the domain is limited to my time at LeTourneau.

God continues to bless me.

I've been somewhat lazy this weekend, but I got one thing done ahead of time, and this coming week will end on Wednesday, and hopefully I will be able to rip ahead.

Thank you for your prayers. I am having a good time.

PS. But I am looking forward eagerly to Christmas Break! A month at home!!!

4 comments:

David Nemati said...: I just had an aura, and I decided to be innovative with trying to end it.
As soon as the VNS was activated, I got on the floor and did 10 pushups, and when I was done the aura was gone. It might have simply been a small aura, but next time I have an aura I think I'll try that again.
Something feels wrong about just sitting it out; I have long had the feeling that just sitting and waiting for it to end is not the best thing to do.; November 21, 2009 at 8:00 PM
Beth N said...: Cool!

I am looking forward to a month of real live David! Last night I wished we could drag and drop you from Skype right into the living room.; November 23, 2009 at 11:05 AM
Anonymous said...: HI David! I was just praying for you today and then received a nice e-mail from your mom. Of course,then I had to visit your blog and catch-up on how your are doing. I'm so happy to read that you have been seizure-free since October. We will pray that that continues. Also, I wanted to send you the following link to another blog-pastormikeevans.wordpress.com

We know Pastor Mike Evans and recently heard him give a talk to a group of home school leaders about God's faithfulness through "the storms of life". Mike had brain surgery in February for an AVM (arterio venous malformation). This problem had only been diagnosed since last Oct. I was truly encouraged by his recounting of God's "kind providences" as he faced brain surgery, open heart surgery, and a lengthy recovery (47 days in the hospital). He expressed how God knew that he and his family needed this trial - whether he lived or died. All circumstances in our lives are from the hand of a loving Father and are for His glory and our good. I hope that you find his story encouraging.

May the Lord continue to strengthen and heal youpastormikeevans.wordpress.com/ ,
Stephanie Bailey; November 23, 2009 at 4:08 PM
David Nemati said...: That's an amazing blog.
No matter how much I've gone through, there are always many who have gone through more.; November 27, 2009 at 5:46 PM

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Pray for David

+Pray for no seizures and healing from epilepsy.

+Pray for no colds (often come with seizures), wisdom in matters of health.
+Thank God for the period of no seizures from July 31 2008 to July 7, 2009, even with one less medicine and his VNS implant being turned way low inadvertently.
+Thank God for a full recovery from the trauma caused by the grid on August 1 2008.

+Thank God for strength during the first four semesters at college.

+Pray for strength and wisdom through the third year, taken from home.

+Thank God for three months with no seizures, from early August to early November '11

+Pray for that pattern, of no seizures or even auras, to resume and remain

WHAT'S UP WITH DAVID--updated 9/19/09

David was diagnosed with focal epilepsy in 2000.
He has tried seven meds and had a device implanted, but still has had seizures and side effects.
Since summer 2007 he has been on a track toward surgery, which can be very effective. In July 2008 we got to the final stage which is to have grid surgery.
Grid surgery on July 29 involved placing a silicone grid of electrodes directly on his brain. A cable connected his head to an EEG screen, and he stayed in his hospital room to have seizures. If the grid shows where seizures come from then usually the spot can be removed and the epilepsy is gone or alleviated greatly.
Things went wrong on August 1 when the grid turned out to be very irritating and caused a lot of fluid buildup and swelling so it had to be taken out in emergency surgery as David started slipping into a coma. The opportunity to do therapeutic surgery was lost for the time.
But things started going well as he had no seizures for 11 months and 1 week after coming out of the hospital. Things are really good because he (accidentally) started taking one less medicine, and because his vagal nerve stimulator was (accidentally) set way too low after surgery, and still no seizures. This is very unexpected so maybe the trauma altered something in his brain and healed his epilepsy.
Despite some bumps things are still going well, with very few seizures. After asking for the VNS to be turned down, then having many more auras, turning it back up, and having sleep trouble, he has had seven seizures since July 7, '09. However, each seizure has been gentler than the last, and a common denominator has been found in many of them - looking at computer/TV screens too long.

How Is David?

Saturday, November 21, 2009

Nice Times

4 comments:

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