Two down, one to go. Another seizure at noon today!
More Ativan as David turned a bit blue so if this pattern keeps up we'll look for another one after several more days. Maybe we should set up a pool for the day and hour--anyone? After the next one it sounds like they will send him home.
Diagnosis-wise, Dr Maleeva showed us the area on the brain where the probes picked up seizure signals. It may; be left temporal or frontal. If today's and the next one look similar they will probably recommend the grid surgery which is just like this only worse. This is good news.
Yesterday was kind of a drag and I know a lot of you who saw me prayed so THANK YOU! Everything looks so much better today. "Trust in the Lord with all your heart, and lean not on your own understanding; in all your ways acknowledge him and he will direct your paths." I needed to adjust my "leaning".
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Pray for David
+Pray for no seizures and healing from epilepsy.
+Pray for no colds (often come with seizures), wisdom in matters of health.
+Thank God for the period of no seizures from July 31 2008 to July 7, 2009, even with one less medicine and his VNS implant being turned way low inadvertently.
+Thank God for a full recovery from the trauma caused by the grid on August 1 2008.
+Thank God for the period of no seizures from July 31 2008 to July 7, 2009, even with one less medicine and his VNS implant being turned way low inadvertently.
+Thank God for a full recovery from the trauma caused by the grid on August 1 2008.
+Thank God for strength during the first four semesters at college.
+Pray for strength and wisdom through the third year, taken from home.
+Thank God for three months with no seizures, from early August to early November '11
+Pray for that pattern, of no seizures or even auras, to resume and remain
Use the Blog Archive to start from the beginning of this record
Blog Archive
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2008
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May
(31)
- Hello from a night guardian
- They are twins!
- ANOTHER!
- Hmmmm
- A Little Correction, Update and Praise
- Waiting
- One Down, 2-4 to go.
- ONE SEIZURE!
- God and adrenaline
- Hands off
- Good night
- I love this job
- Good morning
- He ain't smilin' much
- Resting in the ICU
- He's out now and fine!!
- He's in now
- Eyes on the Prize
- On Track for Monday, cont.
- On track for Monday
- Better are five days like this
- A Little Help With a Mother's Day Gift?
- And More Smiles
- Smiles
- Eleven to go
- Thirteen days to go
- It Is Earlier...
- Might Be Tomorrow...
- Steady On
- Surprise Change of Plans
- Beautiful Sleep!
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May
(31)
My angel!
2008
WHAT'S UP WITH DAVID--updated 9/19/09
David was diagnosed with focal epilepsy in 2000.
He has tried seven meds and had a device implanted, but still has had seizures and side effects.
Since summer 2007 he has been on a track toward surgery, which can be very effective. In July 2008 we got to the final stage which is to have grid surgery.
Grid surgery on July 29 involved placing a silicone grid of electrodes directly on his brain. A cable connected his head to an EEG screen, and he stayed in his hospital room to have seizures. If the grid shows where seizures come from then usually the spot can be removed and the epilepsy is gone or alleviated greatly.
Things went wrong on August 1 when the grid turned out to be very irritating and caused a lot of fluid buildup and swelling so it had to be taken out in emergency surgery as David started slipping into a coma. The opportunity to do therapeutic surgery was lost for the time.
But things started going well as he had no seizures for 11 months and 1 week after coming out of the hospital. Things are really good because he (accidentally) started taking one less medicine, and because his vagal nerve stimulator was (accidentally) set way too low after surgery, and still no seizures. This is very unexpected so maybe the trauma altered something in his brain and healed his epilepsy.
Despite some bumps things are still going well, with very few seizures. After asking for the VNS to be turned down, then having many more auras, turning it back up, and having sleep trouble, he has had seven seizures since July 7, '09. However, each seizure has been gentler than the last, and a common denominator has been found in many of them - looking at computer/TV screens too long.
He has tried seven meds and had a device implanted, but still has had seizures and side effects.
Since summer 2007 he has been on a track toward surgery, which can be very effective. In July 2008 we got to the final stage which is to have grid surgery.
Grid surgery on July 29 involved placing a silicone grid of electrodes directly on his brain. A cable connected his head to an EEG screen, and he stayed in his hospital room to have seizures. If the grid shows where seizures come from then usually the spot can be removed and the epilepsy is gone or alleviated greatly.
Things went wrong on August 1 when the grid turned out to be very irritating and caused a lot of fluid buildup and swelling so it had to be taken out in emergency surgery as David started slipping into a coma. The opportunity to do therapeutic surgery was lost for the time.
But things started going well as he had no seizures for 11 months and 1 week after coming out of the hospital. Things are really good because he (accidentally) started taking one less medicine, and because his vagal nerve stimulator was (accidentally) set way too low after surgery, and still no seizures. This is very unexpected so maybe the trauma altered something in his brain and healed his epilepsy.
Despite some bumps things are still going well, with very few seizures. After asking for the VNS to be turned down, then having many more auras, turning it back up, and having sleep trouble, he has had seven seizures since July 7, '09. However, each seizure has been gentler than the last, and a common denominator has been found in many of them - looking at computer/TV screens too long.
4 comments:
That's a good word Beth. Thanks for being an encouragement even in the midst of discouragement. You're right, God knows what He's doing with David and even if it looks different than you had hoped and it will be better than you could have imagined. God is doing something far beyond David's brain here. It's good.
Love you ~ Diane
Hi David, I hope you got the Jamba Juice yesterday. If not the nurses put it in the refrigerator. I am praying for you.
"Those who wait upon the Lord, shall renew their strength: They shall mount up with wings as eagles: They shall run, and not be weary: And they shall walk and not faint." Isaiah 40:31
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Friday May 30: David had another seizure yesterday. The doctor will look at the EEG info today. Since the seizures are coming several days apart they will probably send him home after the third one.
Diagnosis so far (from the first seizure): frontal lobe or possibly temporal. Next step would be to have him back for this same procedure only with a grid which is more difficult. David is ready and willing!
Ativan issue resolved--nurses need to give it so he doesn't pull the wires out of his head. I get it.
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