How Is David?: He ain't smilin' much

Monday, May 19, 2008

He ain't smilin' much

I just saw David for the first time today. He looked like he felt pretty bad. His head hurt. He threw up so they gave him some medicine for that. But I got one smile out of him, when I said "you've waited eight years for this day!" He liked being told that tomorrow would be better. He said he was tired and started falling asleep after a little while so that was it. I hope you sleep well, sweetie.

5 comments:

Diane said...: David,
I'm praying that God will give you peace and deep sleep tonight, a restful day tomorrow then I promise to be praying for productive seizures.
What a joy to see you looking forward to this with such hope and anticipation. I love to see your faith in God through all of this. The Lord is so good David, and you are an encouragement to us to look to Him and trust Him in whatever circumstances we're in. May God bless you through this by deepening your understanding of Himself even more! I love you!!; May 20, 2008 at 12:55 AM
Stephanie said...: Good Morning David!
Prayer for you and your family was so sweet this morning! We can't wait to see what God has planned for you!
"Like a child I will dance in Your Presence. Oh, let the joy of Heaven pour down on me!"
This song has been on my mind all morning for you. The excitement, the joy of praising God! You may be feeling slow and weak this morning, but God delights in you! Smile David, there is much to smile about! ~S; May 20, 2008 at 8:37 AM
Kristine Amerson said...: Hi David,
The Amerson prayer force is interceeding on your behalf. Trusting our Father, whose knows every hair on your head, to protect and heal you. Resting in HIS faithfulness and asking the Prince of Peace to invade each detail of your recovery! His light is shining through you! Praying for grace and peace upon your family. Thankful to God for bringing you into our lives!; May 20, 2008 at 9:29 AM
Kristine Amerson said...: Hi David,
The Amerson prayer force is interceeding on your behalf. Trusting our Father, whose knows every hair on your head, to protect and heal you. Resting in HIS faithfulness and asking the Prince of Peace to invade each detail of your recovery! His light is shining through you! Praying for grace and peace upon your family. Thankful to God for bringing you into our lives!; May 20, 2008 at 9:29 AM
Beth N said...: David smiled at Stephanie's command! Thanks for all the love and support!!!!!!; May 20, 2008 at 1:25 PM

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Pray for David

+Pray for no seizures and healing from epilepsy.

+Pray for no colds (often come with seizures), wisdom in matters of health.
+Thank God for the period of no seizures from July 31 2008 to July 7, 2009, even with one less medicine and his VNS implant being turned way low inadvertently.
+Thank God for a full recovery from the trauma caused by the grid on August 1 2008.

+Thank God for strength during the first four semesters at college.

+Pray for strength and wisdom through the third year, taken from home.

+Thank God for three months with no seizures, from early August to early November '11

+Pray for that pattern, of no seizures or even auras, to resume and remain

WHAT'S UP WITH DAVID--updated 9/19/09

David was diagnosed with focal epilepsy in 2000.
He has tried seven meds and had a device implanted, but still has had seizures and side effects.
Since summer 2007 he has been on a track toward surgery, which can be very effective. In July 2008 we got to the final stage which is to have grid surgery.
Grid surgery on July 29 involved placing a silicone grid of electrodes directly on his brain. A cable connected his head to an EEG screen, and he stayed in his hospital room to have seizures. If the grid shows where seizures come from then usually the spot can be removed and the epilepsy is gone or alleviated greatly.
Things went wrong on August 1 when the grid turned out to be very irritating and caused a lot of fluid buildup and swelling so it had to be taken out in emergency surgery as David started slipping into a coma. The opportunity to do therapeutic surgery was lost for the time.
But things started going well as he had no seizures for 11 months and 1 week after coming out of the hospital. Things are really good because he (accidentally) started taking one less medicine, and because his vagal nerve stimulator was (accidentally) set way too low after surgery, and still no seizures. This is very unexpected so maybe the trauma altered something in his brain and healed his epilepsy.
Despite some bumps things are still going well, with very few seizures. After asking for the VNS to be turned down, then having many more auras, turning it back up, and having sleep trouble, he has had seven seizures since July 7, '09. However, each seizure has been gentler than the last, and a common denominator has been found in many of them - looking at computer/TV screens too long.

How Is David?

Monday, May 19, 2008

He ain't smilin' much

5 comments:

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