....with no seizures. Aaaaaaallleluia!
I took David to the ophthalmologist This morning. Vision in his left eye was affected a lot after the August 1 incident. It is almost back to normal. His visual field is a bit less in one area but it's not too much below normal. Hopefully it will keep getting better on its own. Just in the last two weeks it got a lot better so that David can wear his glasses now.
Other than that he is doing great. He is still more subdued than before surgery but his strength is coming back and he has gained back the fifteen pounds he lost. Since the VNS makes a person feel full, and its dose is reduced so much now, he might bulk up a lot more, since he had lost 20 or 30 pounds after having it put in a couple years ago.
Tuesday, September 30, 2008
Friday, September 19, 2008
And now for something completely different
Crazy!! Dr Maleeva checked the settings on David's vagal nerve stimulator implant and found that after his surgery it hadn't been set right so instead of giving him a dose every three minutes it was dosing him every three HOURS. Basically doing nothing. And he hasn't had seizures! Last time something went wrong with that thing David had a BAD problem, SO... Dr M was very happy and suggested that maybe in the surgery something HAPPENED that was good. Just what we had been thinking! So for now we do nothing. Except her new prescription was: every night say: "Thank you, God." OK! We will! We will!
Since David can't even have any surgery for at least several months they didn't bring him up in their conference, which makes sense.
Today is fifty days since his last seizure. I think that sets a record for him.
The guest book is going away on Monday so please sign if you haven't and I will save a copy for David to keep.
Since David can't even have any surgery for at least several months they didn't bring him up in their conference, which makes sense.
Today is fifty days since his last seizure. I think that sets a record for him.
The guest book is going away on Monday so please sign if you haven't and I will save a copy for David to keep.
Sunday, September 14, 2008
Sign the book soon
I am going to cancel the subscription to the guest book in a week so if you are thinking of signing please do it soon. (We could have it for free but when I first set it up that way it had a large ridiculous ad saying it recommended a dating service for those who had signed.)
Thanks. The encouragement is awesome.
We see our neurologist, Dr Maleeva, on Friday at 12:30 to get caught up. We haven't seen her since August 5 when David left the hospital. If they don't peek at the blog first it will be fun to surprise her with the news that David has had no seizures.
Thanks. The encouragement is awesome.
We see our neurologist, Dr Maleeva, on Friday at 12:30 to get caught up. We haven't seen her since August 5 when David left the hospital. If they don't peek at the blog first it will be fun to surprise her with the news that David has had no seizures.
Saturday, September 13, 2008
Still seizure free
Still NO SEIZURES! It's been 44 days now--almost a record since David started having epilepsy at age 11.
He is struggling some with schoolwork. He gets tired and his class is hard and requires summarizing some hard concepts written several hundred years ago. We're not sure it will work out. Maybe he should take time off.
His eye looks really good now. It doesn't work quite right still as it has a very narrow field of vision. He goes to an ophthalmologist in a couple of weeks.
Everything is so good without seizures!!
He is struggling some with schoolwork. He gets tired and his class is hard and requires summarizing some hard concepts written several hundred years ago. We're not sure it will work out. Maybe he should take time off.
His eye looks really good now. It doesn't work quite right still as it has a very narrow field of vision. He goes to an ophthalmologist in a couple of weeks.
Everything is so good without seizures!!
Saturday, September 6, 2008
Looking good
David seems almost back to normal now. He tackled some homework a few days ago and is getting into it. His eye is mostly back to its right place and his eyelid isn't very droopy and what there is doesn't look very unusual any more. Five weeks ago was a happy day when we realized that David would recover, and Dr Minazad got it exactly right when she said his optic nerve palsy could take six weeks to heal. He has made a great recovery. We are thankful and we thank y'all for your prayers and encouragement!
P.S. Still no seizures!
P.P.S. Sign the guest book below if you can.
P.S. Still no seizures!
P.P.S. Sign the guest book below if you can.
Thursday, September 4, 2008
Never a dull moment
On Sunday I learned that David had not been taking one of his medicines, Klonopin, for 11 days! I had let him resume filling his medicine dispenser. Whoops! Dr Maleeva said he could just stay off it and see how it goes.
Still NO SEIZURES!!!! 35 days now since the last ones, which were in the hospital. Yahoooo!
David keeps making good progress. His voice and speech are getting stronger, almost normal. His strength is increasing. Physical therapy tires him out but maybe there is an interest factor there. Overall he is just looking nearly back to normal. We passed the one month anniversary of the Bad Day (Aug 1) with a lot to be thankful for.
Next Thursday he starts class at Torrey Academy with Foundations of American Thought. The speech therapist thinks it is just what he needs to get his brain "moving", as he puts it. He thinks the work should be piled on David. If 100 pages a week of Locke, Hobbes, Voltaire, Jonathan Edwards and John Wesley don't do it, we can throw in some calculus and physics I guess. I feel woozy.
Still NO SEIZURES!!!! 35 days now since the last ones, which were in the hospital. Yahoooo!
David keeps making good progress. His voice and speech are getting stronger, almost normal. His strength is increasing. Physical therapy tires him out but maybe there is an interest factor there. Overall he is just looking nearly back to normal. We passed the one month anniversary of the Bad Day (Aug 1) with a lot to be thankful for.
Next Thursday he starts class at Torrey Academy with Foundations of American Thought. The speech therapist thinks it is just what he needs to get his brain "moving", as he puts it. He thinks the work should be piled on David. If 100 pages a week of Locke, Hobbes, Voltaire, Jonathan Edwards and John Wesley don't do it, we can throw in some calculus and physics I guess. I feel woozy.
Subscribe to:
Posts (Atom)
