This always happens

We had a nice appointment with Dr. Maleeva Friday. I shoulda known though--she didn't bring up tapering off his medicine, so I did at the end. "Oh no, not till he's been seizure free for two or three years! Give it three years." I had thought six months would be enough. I should learn that waiting is always the way.

So I guess I will stop counting the days and count months now.

At least we know that we should get on with life, as it is now. Tapering off medicines is a bit stressful and I had wondered if David should be at home and not go away to college till it's all done.

Doctor today

We see Dr Maleeva (neurologist) this morning. It will be interesting to see what she recommends. David has gone now for 112 days w/o seizures. However, he has a pretty major aura about once a week. Last week he had two in one day. He checked his temperature and it was high so that old pattern may be still in place. He says his auras are bad enough that if he didn't know he was not going to have a seizure, he would expect one to start.

David and Bijan and I went to an epilepsy conference last Saturday. We got to see a couple families from the epilepsy support group that have been rooting for us. Dr Sutherling also shook our hands and had encouraging words for us, and is very happy that David is doing so well. It was all encouraging and good.

More later.

Into the triple digits

103 days, no seizures!

Next Friday we see Dr. Maleeva. David is eager to start getting off medicine but she may have a different opinion.

David is brightening up more and more, beyond what he was before. Yesterday he suddenly got interested in applying for a couple epilepsy-related scholarships, which are contingent on being admitted to college, so he's starting on those applications too. It's a bit stunning but it's good!

Halfway and more

Today is David's 95th day with no seizures. He is pretty much back to normal, finally. It took as long as Dr Ross said, 3 months. He still drags his right foot ever so slightly but he says he doesn't feel anything odd, and that his dexterity in his right hand is fine. His eye gets slightly droopy when he is tired.

It's a great thing to get this far past such a bad event. I remembered a hymn with a great verse:
Ye fearful saints, fresh courage take
The clouds you so much dread
Are big with mercy and shall break
In blessings on your head.
(William Cowper)

Good things have happened in our lives since August 1. We have a lot to be thankful for, though we still feel a bit scarred.