Sunday, February 7, 2010

Two steps forward, one step baaaack...

David seems to be slowly going back to the way he was before the surgery.

A couple weeks ago he got a cold. Even a small fever triggers seizures and he had two. One was while he was going down stairs (4th floor dorm room!!) but he felt it coming and got to a landing. When he regained consciousness there were several guys around him.

So far we are still ok with him being away. He manages his sleep and activities to minimize his risk of more seizures, takes his medicine faithfully, and does the thinking about how he can succeed in this. Last week after the two seizures he called the doctor himself, even before calling us. It's good to see him growing in independence.

One interesting detail: he now senses whether he will or won't have a seizure soon. I had read about this a couple years ago, that many people with epilepsy could tell if they would have a seizure that day, and in a study they were right 80% of the time. At that time I asked David if he could tell, but he hardly could imagine what I was even talking about. But now he seems to be able to!