Bad seizure yesterday

We were invited to Malcolm and Lisa Wright's for lunch and spent a long time chatting together about faith and about David's situation. Then David had a seizure followed by another alarming post-ictal phase, where he stood on the arm of a couch and reached for things on the ceiling. Bijan was able to coax him down without provoking him to be combative.

We were all pretty disappointed, especially David. I don't think I've seen him this down about his epilepsy before.

In the night I woke up, remembered, and felt pretty bad, but prayed for God to help me think right. Next thought was 'Psalm 61' so I rested and slept, and looked it up this morning:

A Psalm of David.

¹ Hear my cry, O God;
Attend to my prayer.
² From the end of the earth I will cry to You,
When my heart is overwhelmed;
Lead me to the rock that is higher than I.
³ For You have been a shelter for me,
A strong tower from the enemy.
⁴ I will abide in Your tabernacle forever;
I will trust in the shelter of Your wings. Selah
⁵ For You, O God, have heard my vows;
You have given me the heritage of those who fear Your name.
⁶ You will prolong the king’s life,
His years as many generations.
⁷ He shall abide before God forever.
Oh, prepare mercy and truth, which may preserve him!
⁸ So I will sing praise to Your name forever,
That I may daily perform my vows.

This captures what I want to pray for David: long life, abiding before God forever, and that we would find mercy and truth that will preserve him.

Surgery postponed

Due to another grid surgery patient having a similar bleeding problem to what David had two years ago, his surgery is postponed. Dr. Ross called this morning to tell us they want to look into why they have had this happen several times in the last two years.

We met the young man who had this situation. Last year David and I visited the nurses to say goodbye before he left for college, and we met the young man and his mom. She is a solid Christian lady and her son has a hard case of epilepsy and has had most of the same treatments as David. We got in touch again a few weeks ago before their surgery, and visited a couple times when they went in last week. Saturday she called me with the very sad news that the saw evidence of bleeding on a cat scan so they took him into surgery, and had to take out the grid. It was really good though to be able to encourage each other. We both feel that God is good to us and provides help even though we have to go through this hard time.

We are all fine with this delay and don't mind. That surgery and hospitalization is brutally hard to go through. Maybe God will provide a different way.

June 22 surgery

Insurance approved the surgery so it looks like we are on for Tuesday June 22. It will be at Huntington Hospital in Pasadena. David is excited and optimistic. Mom and Dad are sober.